Hi there. I know exactly what you're going through as my beloved Nalah was diagnosed with liver shunt (PSS) about 4 years ago. She was having seizures followed by partial blindness, which really scared us. After the blood work was completed, we finally opted for the portal scintigraphy exam to confirm her diagnosis. I was a wreck when I found out... At the time, I was a college student and unable to afford the surgery. I suggest surgery if your baby is a good candidate. We medically managed Nalah's condition daily with Lactulose, Sam-E, Hills L/D food and a STRICT diet. She did great with treatment! You would have never known she was sick for the last 4 years of her life.
Just want to let you know we are here for you. You are not alone. You and your baby can get through this.
God bless. |