I am so glad she is improving. The expert in this disease is Dr. Sisson out of Boston. I am surprised they are just treating her with Pred. Depending on the case, he treats most cases with 5 different meds, for necrotizing. Usually only 3 for GME. If you want to read his treatments just google him. You are going to a neurologist which is great so I am sure she has her own protocol. I am tickled for you and your babies improvement. Much luck to you and your little one. |