Quote:
Originally Posted by MauiGirl  Jeanie, I'm sending you hugs and prayers this morning.
One little suggestion I have (maybe you already do this), is to get copies of everything and keep your own "master file" handy. There will likely be multiple doctors and facilities involved in your treatment, and over time it gets confusing. They don't always share info quickly, and it is helpful to have copies available for reference (blood tests, diagnosis, scans, procedures), and to remember dates & appointments & meds. It can also avoid duplication.
I did this in my husband's cancer treatment, and often I was able to provide helpful info to various doctors that they had not received.
I also hope you have a family member or friend that can be your "patient advocate", and also be the person to communicate with other friends/family during your treatment so you won't have to constantly repeat your updates.
Take care, stay strong, and nurture yourself however and whenever you can. |
I didn't know your husband and you had fought this awful disease - so sorry to hear you two are another couple who've been there. I'm hoping he's doing great by now. Sounds as if he had a tiger fighting for his good in you.
I will get those copies. Hadn't even entered my mind though Baylor automatically send you reports on all its breast imaging studies - probably by law or something. That's an excellent suggestion as I hadn't even thought of it this time. Brain is still a little shocked, thank goodness. That's why I needed YT - knew there would be so many here with quick brains and experience in this disease. Thanks again for those prayers!