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Old 02-09-2006, 09:21 AM   #16
scruffy'smom
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Join Date: Jan 2006
Location: New York
Posts: 10
Default scruffy update

Well, he is stable and meds seem to be working but.....I feel like its anytime now. I'm hypervigilant, full of anxiety, depressed. I'm just having a hard time with this. I just can't let go. He is doing ok now--wags, eats, ..sometimes he tremors, I think due to the aminophylline? The lasix is ok and the elanypryl too. I wonder what these drugs are doing to him in the long run and why they say only 6 mos usually to live. I wonder how Gizmo is doing? And anyone else whose baby has this?
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