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Originally Posted by MandiesMom  Thank you so much, everyone. CF is so maddening! It's pure evil, in my opinion. Recessive genes that people don't know they have and then 2 come together in love and make a child, who ends up with both genes. Sentencing that child they love so much to a life of endless pain and suffering. Leaving this earthly body so young is actually a blessing for that child. Just evil.
The first time this has ever happened, according to the funeral home. They had 2 young ladies in their care at the same time and both died from CF. Two days before Jada, Amanda Bowden (27) passed away from CF.
Both families beg of anyone who wants to do something or help to:
1. Sign up to be an organ donor (Jada died waiting on lungs - she was on that list for 3 1/2 years);
2. Please donate to the only organization dedicated to research to finding a cure to this evil disease - Cystic Fibrosis Foundation - Home |
I am so very sorry for your loss. It is a heartbreaker of a disease, I do know as I lost two of my close cousins to CF, many years ago.
Just in case you do not know, there is a genetic test now available for CF, and this simple test would let someone know if they have the gene for this disease.
I do wish you and your family all the very best, it is so very hard grieving the loss of one so young!