Quote:
Originally Posted by concretegurl  I have no advice other than I completely understand wanting to postpone tubal feeding for as long as possible.
A friends sister after a long resistance to being able to fed had one put in wgen she failed to thrive, after a fewlong years another put in replaced. I don't know the details but her mother said its both a blessing in keeping her alive and the bain of her medical issues.
I truly have your son in my thoughts sending positivity your way (he is absolutely adorable!).
Hope the neurologist can provide a positive solution to all you've been dealing with.
I swear by the heart beat stuffies and my youngest 18 months old, has severe
GER ge has slept on a wedge keeping him elevated since 2 weeks old and
requires a special diet and to be upright.
It has helped emensely.
My 8 year old also had reflux he has a medical bed that keeps his head elevated |
Yeah his pediatrician leaves the option on the table and I respect her because she always tells me we will only put it in if we have to. We make meals fun, no pre assure on him to eat at all. We offer and if he says no or try to eat and doesn't get much eaten, then we give pedia sure. The doctors said they don't care what it is if he asks for it give it to him, so that's what we do.
Your poor babies I will be praying for them also..
It was awful to hear that his tummy was full of acid and had likely been that way all his life. I hate knowing that he likely felt sick or uncomfortable and had no way of telling us and that even when he started to talk he likely thought feeling that way was normal by that time.