[concretegurl]

I have no advice other than I completely understand wanting to postpone tubal feeding for as long as possible.

A friends sister after a long resistance to being able to fed had one put in wgen she failed to thrive, after a fewlong years another put in replaced. I don't know the details but her mother said its both a blessing in keeping her alive and the bain of her medical issues.

I truly have your son in my thoughts sending positivity your way (he is absolutely adorable!).

Hope the neurologist can provide a positive solution to all you've been dealing with.

I swear by the heart beat stuffies and my youngest 18 months old, has severe GER ge has slept on a wedge keeping him elevated since 2 weeks old and requires a special diet and to be upright.

It has helped emensely.

My 8 year old also had reflux he has a medical bed that keeps his head elevated