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Originally Posted by kjc  Just a suggestion... my DD has a PEG tube and takes Jevity 1.5 by prescription. I don't see why this formula could not be taken by mouth. It is super nutrient dense... and smells vanilla-y. It is fantastic at getting my DD's weight back up. She gets 4 cans daily maintenance (but I think she's still gaining).
Does Sammie eat puddings? We had DD on special pudding product from a company in Florida, also calorie/protein dense... I'll find their info for you... they also make other products... some drinks that may help... 4WebMed
Magic cups is what we fed DD as a supplement... served in hospitals... they
have a ton of products listed by medical problem... |
I will be praying for your DD and family.
I took care of my father while he was dying from cancer and he had a PEG tube also and the Jevity name sounds familiar, I think that is what we had for him. We have several cans left in his room. I will get my DH to go in the room this morning ( it will be two years on Sunday and I still have a hard time going in) and get a few cans so I can check the exp date. I'll also ask his pediatrician what she thinks as well.
Now the pudding hmmmm, we can try again, usually things with smooth textures he will sometimes take, but the last time we tried pudding he acted like he wanted it but the minute it hit his tounge, he pulled back and said " I don't want it" and he did this about 4 times in oh maybe less than5 minutes before he finally licked some off the spoon. But then he walked off and wouldn't take any more.
We know he has some sensory issues and have an OT that comes out once a week with a background in feeding. She is really good with him and after working with him for the last year she has gotten him to eat a half of an egg at one time. That's huge for him. She's also gotten him to accept different textures a little.
Thank you for posting the link, I'm on my way right now to check it out. We are always buying and trying new things to see if he will eat it. Whatever he wants in the store we buy it, even though we know he likely won't eat it. We are roughly paying about $300-500 a month in just pedia sure.
He also doesn't sleep well.... Anyone have any suggestions on helping him to sleep? He's up now. He's gotten up roughly about every 2-3 hours since birth. He's never slept the night through.