This is such a scary and sad story it has me in tears. At least you now have a possible diagnosis for the cause of the problem and who knows what one day soon might could be done to help him. I can tell from you words that you are floored, overwhelmed. But sometimes getting that reality punch, once we've had time to deal with it, helps us to focus harder as you have been doing, on answers and better treatments. Maybe brain surgery could help! It sounds like you and that baby have already been through frightening and awful times with this and I'm praying now you might be on the path to answers and real help. I pray little dear Samuel will get some real medical help and that your other children will be able to handle the news in time and help Mom and Samuel through this by just being kids. Go ahead and reel with the punches now, grieve and cry, and when you can, pick yourself up and prepare for the fight ahead for Sam's future. I will pray for your peace and strength also, Tracy. Please let us know how he is doing as you can.
__________________  Jeanie and Tibbe One must do the best one can. You may get some marks for a very imperfect answer: you will certainly get none for leaving the question alone. C. S. Lewis |