Oh my goodness, thank you, everyone. Well, the bad news is Corey has been having 1-3 seizures each day. The good news is that they are small, only lasting a few seconds. He is fully recovered after they are over. Three is so much better than 15-20. The doctors re-used the exact same incision line from the first surgery a year ago, so although it's a bit lumpy, at least he doesn't have 2 big scars. He shaved off all his hair, and it's been growing in nicely, so no more mohawk.
The staples are out now, and he has been healing beautifully. He's been a bit of a bear, but in retrospect, it was the pain medicine that was making him so mean. He has weaned off, and his temperament is much improved.
The doctor's official stance is that the surgery is not considered a failure unless he is still having seizures in 6 months. The brain is still in trauma, and there is swelling, so hopefully it will quiet down with time. You know how they say that if you remove a piece of brain, that other sections will take over the functions? Well, sadly, that happened for Corey in reverse. The damaged brain kept invading, taking over, and corrupting his good brain. The million dollar question is what will happen now? Will the brain quiet down and the seizures subside, or will the corrupted good brain now continue to seize on it's own and
corrupt even more and more good brain, causing more and more seizures to crop up every day. That scenario is very real, and quite sobering. I guess we will have to wait and see, as only time will tell. There are no medications that work, though he is still on one, and he is all out of surgical options at this point.
Corey has been so brave. He is hopeful that the remaining seizures will subside, and although he wishes they would all be gone, he is relieved that they have been greatly reduced. At first, I was disheartened when they returned. When I look back now, I think I was just exhausted mentally and physically. Things always look the worst when I'm tired. I remind myself daily that my faith is not rooted nor dependent on our circumstances. Nothing will change that fact. My faith will not be moved. I have, and I will continue dreaming God-sized dreams for this child. For as much as I love my Corey, I know that there is one who loves him more. Thank you all for your continued prayers. You've been the angels by my side, and you are all just the best!
I'm still trusting, and still believing.