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Originally Posted by Rescuemomma  First of all - let me tell you how sorry I am to hear of this diagnosis! I would highly recommend as other have getting an internal medicine specialist to do an ultrasound and determine what type of shunt. They can be either inside or outside the liver. At 4 years I'd be very concerned this may not be congenital. It may be an aquired condition, caused by high blood pressure inside the liver itself - and this often creates multiple shunts. Wither congenital or acquired, the location will determine if surgery even is an option. Shunts inside the liver are sometimes not opperable. I'm searching now for some good articles to help you better understand what's going on! Knowledge is a great thing when you're facing something so scary! I'm so so sorry, and pray you can find the answers you need to get your baby healthy again! |
Yes, thank you for the help, I need it. I'm trying to keep the freakout in check until after I've gotten my baby out of danger
I'm trying to find experts in my area, but so far no luck. I'm waiting for tomorrow when everyone's at work to make phone calls, but I worry about asking the fox how safe is the hen house on his watch
I'm trying to learn as much as I can about LS, diagnoses and treatments before this Wednesday 9th. This is when our appointment for the ultrasound is to take place.
Thank you, again
