When I was such a mess, not knowing anything about this horrible diagnosis, LadyJane and 107Barney were my life line. They both worked endless hours researching facilities/surgeons and talking with me to best arm me with knowledge in making the best informed decision.
Zhoie & I owe both of them more than words could ever express
Oh, there is an AAI forum on FaceBook too. Anne on FB is absolutely wonderful and will give you so much support and encouragement pre & post surgery. I'm so indebted to Anne and so very grateful to have such wonderful friends on YT, they helped save my girls life.
Anne is also on YT, user Anaic.