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Old 06-05-2011, 08:21 AM   #51
gidget529
Gidget & Sidney's Mom
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Join Date: Feb 2011
Location: PA
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Originally Posted by jmdt View Post
Thanks guys. The support here really means alot. I feel she is kind of getting depressed about this. I have to watch her like a hawk. I'm a wreck. She just keeps saying that people just think she's crazy. Unfortunately is is very difficult for her to describe the "numbness". I took her to a University Hospital. There are tons of doctors and professors there so I'm sure we will get an answer. If not I will take her into New York City and get her to one of those hospitals. I am right here on Long Island so the "city" is only about 45min away. My older daughter had her leg surgery in Hospital for Special Surgery and subsequently at New York Presbyterian Hospital so I am not afraid to go there to get the help she needs. It is just so frustrating seeing her this way. My husband and I are just wanting to help her "get back to normal"
Just seeing this thread - so sorry your daughter and you are going thru this! I'm sure this is causing both of you tremendous anxiety.

I can't agree more w Crystal about getting your daughter to a large university hospital. There are some very smart ppl in the NYC area in the teaching hospitals. They are much better equipped in diagnostics and trained in rare presentations of illnesses.

Just a thought, you may have already done this, but a journal of when this started, how started, which parts went numb first, progression of numbness, would probably be appreciated by the drs.

Will be keeping the two of you in our prayers.
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