There are a few of us here that have AAI babies, we have a support group on Yahoo.com I will get you an invite to help you through this time.
Please know there is hope! We are here for you.
My Shelby has AAI she is post surgery, also with hydrocephalus, and cardiomegaly, and enlarged esophagus. At this time she is pain free.
I am Anne, also there is Val, Vicki, Jamie, Sherryl &lynne, we have a few new members.
I'll get into the site and get you an invite.
Please keep your little one restricted crate, playpen, treat like a "CHINA DOLL", very fragile at this time.
anne |