Lindsey
Thank you very much for writing back. Sadly to say, you are one of the experts on this topic. You can write from experience which after reading your posts...you have had a lot of. I did get on that web site that you suggested...Thank you. It does give useful information. This web site will be VERY helpful.
Kobi's dx is similar but a bit different. The orthopedic surgeon and neurologist know that Kobi's condition is due to flattening of the spinal cord. This was the result of the MRI. They did a laminectomy (which removed an extruded nucleus T12-13) but said that improvement was not guaranteed. It depended upon how much damage had occurred. I am sad to say that improvement did not occur. He never had pain or discomfort which differed from your baby.
Neurologist and Orthopedic surgeon want controlled physical therapy. ROM, swimming and the cart are approved. In the beginning after surgery, he was on crate rest for 6 weeks. He was then allowed only supervised walks in the house. I started him on the physical therapy which was recommended. I just wish he would have had more improvement.
Since improvement is questionable (I keep hoping), I am just trying to keep Kobi happy. He is ... but I am ALWAYS looking for new suggestions. I want to try the Dogger...to let Kobi go back into the woods. Just riding instead of running.
Please keep posting me suggestions that have worked for you and Layla. My heart goes out to you and Layla. You are a wonderful mom. Just reading your posts about the pain and restlessness sounds VERY overwhelming. It is so hard just to watch the stumbling...putting pain on top of that...sounds almost too much to handle. You both are in my prayers.
Thank you again for helping me and Kobi.
Abby |