Ladyjane - thank you for posting the link for Roriee, what an amazing story. And you are an amazing person for not giving up on this adorable little girl.
I am hopeful for Carson, I just wish we were 5-7 days from now - so he could start to feel better from the Prednisone.
Tuesday he will get the blood tider (not sure if that is how you spell it) done, and then we can start on the Lomustine. I believe this is what the Neurologist is suggesting, I do know she mentioned something that would happen every 4 weeks - so I guess that was it.
I'm also going to check on the diet they mention in Dr Sisson's report - RD, however, I will probably figure out how to do it in a homecooked way.
Thanks again! |