Quote:
Originally Posted by Carina  OK, bad news!!!! The prognoses are not good at all. The spinal fluids tests came back, this is neorogical. The neurologist will visit him later today and will let me know if this can be treated or not, but the specialist is not positive at all. He is currently under sedation......... |
If the Scintigraphy came back normal, that means probably no single shunt, however with Bile Acids that high, he does have liver issues, probably MVD.
He could have neuro issues as well.
If this is:
gme/nme
chiari
hydrocephalus
AAI / AAS
Please know that there
ARE things that can be done to help him ok, please don't make any hasty decisions of putting him to sleep without really looking into what they say is wrong with him.
Please DO NOT GIVE UP
PRAYERS ARE COMING FOR YOU AND HIM
