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Originally Posted by ladyjane  So far, Roriee is not responding to the medication. The biggest problem right now is her comfort level. She is still screaming whenever she moves even the slightest bit.
The neurologist is not sure if this is pain from the AAI or something possibly related to the GME, perhaps behavioral. He does lean towards it being from pain.
Humane euthanasia is being discussed but we want to be absolutely certain that we have done everything possible to help her.
The plan for today is to complete the infusion of cytosar this morning. We asked about a body cast to see if that might make her more comfortable until we can see if she will respond to the medicine. We will then give it another 24 hours to see how things are going. Sometimes it can take a couple of weeks before the medicine will show improvement. The only way we can have the luxury of that time is if the body cast helps her comfort level.
I personally heard her screams the other day and it was horrific. This is one of the saddest things I have ever encountered.
I know you all are praying for Roriee. You are all total angels for what you have done...the response to her has been so overwhelming to all of us. Thank you is not enough to say for what everyone has done. Your support in so many different ways....kind words and everything is just so appreciated.  |
Thanks for the update linda .. my heart is very sick just reading about her pain, I can't imagine seeing hearing this pain.
Just a question: this medication that she is on, does it usually work immediately? or some sort of time delay before it takes effect?
Take care