I am scared about her quality of life, and however selfish it is, I am worried about how it is affecting our quality of life. We just weren't expecting it and we will do anything to make her happy. I hate to think about it, but if she doesn't get better we will need to make big changes to afford care for her when the time comes that I can't bring her to work anymore. We will get through it somehow. She is just so young and I wanted her to have the best life I could ever give her, and I wish I would have known about this disease sooner so I wouldn't have let her bound up and down the stairs, or probably wouldn't have bought a house with so many stairs to begin with. My heart is broken, and I don't know what the future holds, and that is why I am scared.
__________________ Lindsey and Layla, Lucy, and Kash  |