I am so sorry that your son and your family are going through this. It is horrifying not knowing what is going on with your child. My son is a regular at Hopkins, so I understand your frustration and fear.
The only thing I can tell you is to stick with your intuition and keep letting the doctors know the seriousness of the situation. You are his advocate and doing what is in his best interest, so continue to stay strong, have faith, and say what is on your mind! As he needs to see your strength now!
Will keep all of you in my thoughts and prayers. |