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Originally Posted by dwerten  glad to know his place is nice - did you have done at the tustin facility or los angeles?
Did they give you the scintigraphy on a cd or a paper write up? I would call dr tobias at ut and ask her how to get it to her and maybe he can even email it to her as i think you were going to go to her for surgery so just let her know that and I am sure she will help you
also ronlynn on here had the scintigraphy done by broome as well so ask her what percentage teddi had and compare that as well and she had dr tobias do the surgery so i am sure she will help you she is very nice. I am sure it is a single as usually they start with single and teddi was a year or just over when her symptoms kicked in so she had the surgery after one year and was only one shunt. I doubt if she is young it is a multiple and that is the only time it is inoperable |
They gave me a CD with pictures of the scintigraphy and a graph of her shunt fraction. Would Dr. Tobias answer my phone calls. Do you know Ronlynns YT page?