My baby had LS surgery at UT in March. Dr. Tobias and her staff are wonderful. What has been as much help to me is the support that I have gotten from -
Liver_Shunt_And_MVD_Support : Liver Shunt & MVD/HMD Support
Please register, copy and post your story. They have all had liver shunt stories, some very similar to yours and know the answers to most of your questions. They have literally been lifesavers to me at times. Good luck to you and your baby...my thoughts and prayers are with you....~~~Valerie