Jenn:
I would suggest that you join the yahoo group for liver shunt and mvd. They are a group of well-informed people who have extensive experience regarding these diseases. They may have referrals to doctors in your area as well. They can help you understand some of the tests and give you suggestions on foods, supplements, etc. Please get some help from them -- and make sure you update us here on YT as well.
Liver_Shunt_And_MVD_Support : Liver Shunt & MVD/HMD Support
Also go to livershunt.net for success stories of people who have gone through this.
Good luck to you and your baby!