Quote:
Originally Posted by Michele4972  Yes,
That is why we went in for more tests last week, the internal specialist at Purdue University (they saved his life) will be checking into other options depending on his "levels" after we get all results back this week. I know this is a rare disease, I was just hoping to maybe hear a few success stories or get some treatment advice from others that may have experienced this awful disease. |
There is a thread somewhere here with current cases of this disease and treatment. You could probably find it by typing in "lymphangiectasia" and then clicking "Yorkietalk.com" in the search at the bottom of this page. Prednizone is very popular and I think sometimes cancer drugs are also used.