I'm here for you...Winston is almost 5 years old and has been having episodes very similar to your baby, for nearly 2 years. The vets and specialist say Winston's "seizures" are from low blood sugar and not epilepsy. I was able to rush him to the vet, so she witnessed the seizure and his glucose was dangerously low...I believe it was 25...the normal is 60-132. Does Manolo lose control of his bladder? Winston does not. Winston's bile acid test was near normal...no shunt.
NutriCal always brings Winston out of it. It was advised to feed him 6 small meals daily. I also have to check his blood glucose at the first sign of a seizure...it's always very low. He is also on diazepam (Valium) to keep him somewhat calm, to conserve his energy/sugar. Nothing I do really seems to help. I'm very curious what your vet finds with your little boy. How old is he? My thoughts and prayers are with you, I hope they guide your vet to an answer...
__________________ As Ever, Kathy 
Intruducing Bentley  Winston and Spencer: RIP My Sweet Angels |