Theodore update as of Tuesday Morning 12/30/08 Thank you everyone for your prayers...Theo is doing much better today and as of last night it is possible he may go home today...We are so excited and his little brother Charlie is jumping for joy along with my daughters and I. But there is some not so good news...on his second bile acid test once he was able to eat on Sunday his liver function showed that the blood supply was not going through the liver and hence the toxic blood went right to his heart and other organs... so now they are pretty certain that we are back to square one with the liver shunt theory and possible ulcer which is causing the internal bleeding. They feel that he is much stronger and able to go home with meds and a special low protein diet then in 2 weeks we needs to have another series of bile acid tests and if the count is still high they will perform the surgery in about 2 -3 months when he is strong enough to undergo the procedure. His doctor said since he is so young he should fully recover and have a long and happy life...So it looks like we will be eating pasta for years to come and steaks are no longer on our menu...but who needs steak when you have two bundle of joys to greet you every day...Thank you again for all your support and prayers it helped my daughters and I so much and most of all Theo our beautiful baby boy... |