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Old 12-16-2008, 12:04 AM   #53
adorame
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Location: Ohio
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Quote:
Originally Posted by labrown View Post
What in the world does he eat? How hard for him!
You don't know the 1/2 of it Kennedy was a really sick baby with a lot of GI problems, and also was born with a Primary Immune Deficiency. Without going into his long drawn out story, Ill give you a short story on him

He actually had to be on a medical prescribed baby formula called Vivonex Pediatric. He was 2 weeks old when they started switching his formula, at 4 weeks old he was so dehydrated and had a blood infection they sent him to Rainbow Babies. He was seen by Ped GI, he put him on the Medical food, but he had to be tube feed by then.Kennedy kept getting sick with Super Infections and was in the hospital all the time! They had to do a surgery on Kennedy to stop him from vomiting, it's called a Nissin Fundiplaction, they placed a micky tube at that time. 24 hours latter, he had a hospital infection called Serratia in his blood, that tipped off Ped Immunologist to run test and they found whey he got infections all the time, he had an Immune defect that could be treated with Gamma globulin, so Finally he stoped getting so sick and got to come home, he was 9 months old by then!! Because of being tube feed, it took a while for Kennedy to eat by mouth, when he did, he had reactions to food, so more test were ran and he was found not only to have the dairy and soy allergies, but Celiac too. We have worked with a nutritionist on his special diet for the past 14 years! He calls his food's the "healthy" foods He loves Vegies and fruit!!

I guess it doesn't bother him about all the stuff he can't have because he doesn't ever remember being able to eat some foods beings he was under 2 years old. We just alway's make things that he can have, like we use rice flour and rice milk, they even have rice dream Ice cream and Sorbet. His nutritionists have all ben wonderful with ideas of things to use in place of the things he can't have!
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