[Mom2BabyNatalie]

Originally Posted by dianethomas

I'm afraid if I had read all this a few days ago, my advice would have been to snatch Emma from the docs and run, don't walk away. She should not have had surgery, in my opinion. I wouldn't have known that when Z was E's size, but now I can help others with what I've learned. My advice to you is to let her heal from what's been done, but NO MORE SURGERY. She will learn to suck and swallow just the way she is. She doesn't know she's different. You may have to tube her for a while. I had to do it too, but we made it.

My goodness... how can I just leave her little face "half fallen off" like it is? Raw and open?

I don't know.... I think we're already in it this far, I need to let the surgeon take care of her.....