I just saw this post... Taffy might have GME like Brooke!!! Brooke has Granulomatous Menigioencephalitis. It was a rapid onset with Brooke too. It is usually diagnosed with an MRI and a Cranial Spinal Tap. They they start with large doses of Prednisone to surpress their immunity. Please call, Cynthia, Gayla or Michele if you need other info from me....I have a neurologist in Boston that is an expert in GME that can help if you need to. He can consult with the doctors at Texas A&M. I'll pm you all my phone # again, in case you don't have it from KC. I'm so sorry, Taffy and Suzy is going through this, sending postitive vibes, hugs and strength. |