News flash!! I actually got to talk to Nathan on the phone! We were all so excited we put it on speaker phone and we all got to talk to him for just a minute. I told him I loved him and he said "OK Maw Maw. Can I talk to Tony?" He kept saying hi Tony and the baby actually kissed the phone. It was beautiful.
They took his catheter out and want him up walking now and then. He ate his first meal. My son has been trying to get him to eat but wasn't hungry. I guess after you haven't eaten in a while your just not hungry. Anyway, son gave it the usual try yesterday and mentioned chicken nuggets and nathan bout jumped out of the bed he said. Well, that boy ate a whole kid meal. Dr said he could have anything just to get him to eat. He was up watching tv last night.
The third biopsy came back yesterday and all three have shown not viral but genetic. So now they at least now what direction they need to take. He gets tired easy, still have to sedate now and then to calm him. Hoping if we can keep him eating he will feel much better. That's all I know for now. I have the phone number to call directly to his room now! I can call when I want!
All we can do is wait now to find out what the shape his heart is in and what direction they are gonna take.
Thank you so much for your well wishes, comments and prayers. They lift me so much. Later.
~~~~~~~~~~~~~~~~~~~~~~~~~~Denise
