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Originally Posted by cvasquez I am sorry to hear about Ruthie. Where are you in the process of treatment for her? |
She is doing so well on her medication and low protein diet that we are just going to monitor her for a while and do blood work every couple months to keep an eye on things. She's 2 and had never shown any 'major' symptoms (definitely nothing neurological) and is very happy right now. So, for now, we are opting to put off surgery for as long as possible — especially since she is so small and the surgery is so risky. In the meantime, I'm researching and have already figured out a 'gameplan' for next steps (ie, more testing to try to pinpoint what it is — if it's MVD or indeed a shunt, etc.)