I posted this on health, but didn't really get alot of response to it. So, here I am again asking for guidance. On Friday, I will be adopting a almost 2 year old boy who have this condition. I was wondering if any of you experience or have other babies that has this. I was also wondering, if further along, Can I ask for guidance on raising him. The person that I will be getting him from is very nice, honest and reputable. She told me his condition honestly. I am worried and sad when she told me that, she cannot assure me on his lifeline. That means, he can die tomorrow, a month, a year or have a full life. I am so sad right now. I wanted him so bad so I can take care of him. But in the other hand I am so worried.