My son was diagnosed with Crohn's Disease when he was ten, almost eleven years old...
The doctors didn't really know what was wrong at first, the symptoms started out with headaches, stomach pain, being lethargic..
His symptoms escalated before his formal diagnosis as he lost over 20lbs. quickly (he found it difficult to eat without painful cramps)this is when the doctors finally put him under anesthesia and did a colonoscopy. They also scoped him from the top down... that's when they saw the lesions in his upper intestinal tract.
The doctors immediately wanted to put him on steroids which I refused (you can blow up like a sausage!) Luckily, he is able to maintain on a variety of non-steroidal drugs at least for now - without any surgeries.
Sending prayers your way...it's never fun to have any symptoms like these
Debbie