jogi37,
I'm very sorry about what is going on with tiny. My niece has this disease and my cousin know's how you feel. The best thing you can do, is not let tiny running or play. As this cause her more pain and swelling. In time her blood with start flowing again. It's just take at 1 to 2 years for it to fully flow again. In the meantime, try keeping tiny on full bed rest. So her outcome is better. If you need more info do not hesitate to write back.
