[Mybabe4me]

good evening everyone. i was just talking to the doctor and this is what i was informed for the night. the neurologist from boston that we contacted finally got back today. he said there was nothing more they would be able to do for him down there (they are doing everything they can up here) but he would recommend having another CSF perfomered on the fluid on his brain. so on friday, they will be taking a bit more fluid. this was due to the levels being very high (protein and cbc). so they want to make sure the antibiotics are working and that its the levels do not continue to increase. so once they get those results (which should be the same day or the next) will determine whether or not he is treated for the full 21 days or so. right now, they are leaning to having the 21 day treatment just in case. also, his cortisol levels were low (which is a gland). so they are not sure if he is producing any. they will give him some cortisol on thursday, and then take his blood 30 minutes later, and then 60 minutes later. if he isnt producing this, then it can be easily treatable with medication. the last thing is that his central line (which is a i.v. that runs in his chest to almost his heart) is not allowing them to take blood anymore, and is becoming sluggish when they give him his antibiotics. so on thursday, they will try to take blood again. if they cannot, they will try to get an i.v. in and keep it in for two days, then try another central line or pedal line ( i believe thats what its called). that line will go into his arm and again will run up it and into his chest near his heart. this line is better and will keep access for up to two weeks. now this is all because if he has to have another weeks worth of antibiotics, they will need a good line to pump it all in. so far this is all the information i have. i wanted to thank EVERYONE who has been so nice to donate money for the family. it is very difficult with mike working and me staying up here. and i know you all realize this. heidi, mom, nana, dad (chris), chris jr., milton fire dept., mike smith, grammie and grampie and many more have donated and it helps. i just wanted to say thank you to all of you!!! i will update with more information at some point tomorrow (unless i get more info. tonight) thanks!!!!
becca