Sorry Everyone,
I have been up with my daughter and grandson today. I really wanted to hold him but he started to have seizures so we kept him in bed and watched him alot. I am really wiped out from the visit and the traveling. I have been on the road since 5:15 this am. I still have to take care of Babybear, change his diaper, feed him, and do his physical therapy, and massage therapy. So my daughter just emailed and I will post her email she can explain things better. We still need continued prayers and there is not many candles lit anymore. So Please lite a candle for my sweet baby Mikey.
http://www.gratefulness.org/candles/...l=eng&gi=Mikey
Becca's post
hey everyone. just wanted you all to know how the day went. we found out that he had a seizure at about 4 this morning and he had three more when we were here. we have found out how to tell when they are coming on and the doctors believe mikey knows as well because he will wake up about 10 seconds before one, let out a little cry and then go into a seizure that last about 5 to 15 seconds. they are not long at all. so he is being medicated for that with a different mediciane again (same one from before). we also found out that part of his brain didnt develope, but this part doesnt do too much for the brain, so it wont affect him a lot. however, they are concerned that it may have affected his pituatary gland, which controls all other glands, which controls growth and whatnot. so they have taken blood to see if anything else (other then his thyroid levels) are high. so we had a visit from an endocronologist today to see what he thought. we found his levels for his thyroid were elevated, that he is hypo thyroid right now. so that is what triggered them to check his mri again and find the malformation in his brain. however, the endocronologist does not believe the pituartary gland has been affected because his is growing normally, both weight and lenght and is also focusing on objects when he looks at them. we will know more in about 7 to 10 days. but no matter what, he can be medicated if they find something wrong, and it will correct his problems (even though he will be medicated for life, as long as he is okay). the genetics doctor saw us again today and explained that his genetics test all came back normal and nothing seems to be wrong in that department! a neurologist also stopped by and said that everything is looking good right now. he is sucking his bottle again and sucking on his binky, also maintaining his temp. so the neurologist seems to believe the infection mikey had/has caused most problems. he said his seizures may stop once the infection is completely treated, then again, because seizures run in my family, they may never stop. but again, he can be medicated for it. we have taken pics today, and he is doing better. i will be creating another montage once we are home. he is a doll face! he was petting his zebra and trying to pick it up today. you cant tell me that he is going to be slow when he is already doing that (at not even a month old!!!) i will update later!
becca