Originally Posted by ladyjane (Post 3743298)

Just spoke with Tena. She and her husband visited with Zhoie today. She sounds very relaxed about all of this and confident with the facility. The resident explained everything in detail.

OK...here is what I know as it was explained to me. They will be doing a flouroscopy tomorrow to get a better idea about the stability of Zhoie's neck....they will be able to visualize the ligaments there and see if they are intact. The 1st and 2nd vertebra of the neck are stabilized by the dens and ligaments. They are not seeing a dens which would indicate that this is congenital. They want to see whether or not the ligaments are stabilizing those vertebra. They need to know if there is a separation when Zhoie's neck is bent...that will be seen with the flouroscopy. IF there is a separation, then that will tell for sure that AAI is the problem. If there is not a separation, then they will be doing a spinal tap to rule out the possibility of GME or other problem as a cause for the neck pain that Zhoie is having.

She also has a malformation of the skull which I am thinking might be chiari....Tena was not sure of the name; but she said they are not concerned about it.

She is pretty tired right now...not sure if she will be online but she asked me to update this thread. She sounded positive about all of this and is so thankful for all of the support and prayers by the YT community.