Also, Orahurd, please let me know when you see these replies....I want to move this to the "Sick" Forum.
Btw, Wylie was on Lysodren (mitotane) - hardly a side effect at all..we kept increasing his dose, but couldn't get his levels down to where we needed (did ACTH Stims every 4-6 wks since May). We just stopped Lyso and started him on a low dose of Ketoconazole...and I don't think it's doing much - we Stim next Thur, so we'll see (again, hardly any side effects).
Nutshell is this: I wouldn't recommend starting Lysodren until you know specifically what your kiddo has (Is it Cushing's for sure? If yes, Adrenal or Pituitary?) (Is it Atypical Cushing's? If yes, which hormone is causing it? Bc every intermediate hormone has a specific regimen.)
So sorry if I'm overwhelming you!