Help,My Baby has GME-Granulomatous Meningioencephalitis

[saphire]

I am so pleased she is doing better.

[laurenr]

Sweet Brooke, I am so happy that you seem to be regaining your strength... gotta keep that engine going little girl!
Hugs to you and your Mama, who fights so hard to keep you healthy,
Lauren

[YorkieChick1]

Originally Posted by yorkieK9trainer

She's ADORABLE!

Where did you get her from? Did the vet talk to you about this being genetic?

I truely hope your wee one continues to heal.
*hug*

GME is not genetic, it is idiopathic which means they don't know how or why they get it. They are almost certain now that it is an autoimmune disease but not what triggers it. Her breeder has Brooke's Great grandmother, who is 15 years old and alot of Brooke's ancestors and no other case of GME. GME is still fairly rare, if it were genetic we would see alot more cases of it.

[doodandy]

Monday ... my 10 month old 2.9 lbs Yorkie was nuertered.... his testicles never dropped so they had to go in and find them.... he has two abdominal incisions.... when he came home Monday he pooped and peed...... and whinned ... but he seemed okay..... Tues..... he pooped but would not or could not pee..... he has been eating some and drinking..... I have stayed right by his side and watched his every move.... finally last night he would stand over his paper and rock back and forth ..... and you could tell he was trying to pee.... his little penis would move up and down like he was trying real hard..... and he would make small little yelping sounds.... I took him outside back and front ( peeing in the front yard is really really cool ) and he couldn't even go there....
finally about 1:00 am I took him to the 24 hour emergency vet and they catherized him which relieved him and gave me a different pain med.... ( metacam ) My vet gave him torbutrol 1mg.... and told me to give him a dose at 8PM and then another dose in the morning.... so last night I gave him another dose at 8 Pm ( that was during the time he was trying to potty and couldn't.... I did not give him the metacam since he had taken the torbutrol ...last night...
Wed morning ( today ) I gave him the metacam and he peed a good amount once this morning about 7:30 but has not peed again it is 1:00 PM now... I called the original vet and ask what I should do and he said don't worry he should be fine .....
Has anyone had any experience with this.... he walks around and seems okay he just won't potty ...... what can you do to make them potty ....
I just want to do the right thing.

[doodandy]

Originally Posted by doodandy

Monday ... my 10 month old 2.9 lbs Yorkie was nuertered.... his testicles never dropped so they had to go in and find them.... he has two abdominal incisions.... when he came home Monday he pooped and peed...... and whinned ... but he seemed okay..... Tues..... he pooped but would not or could not pee..... he has been eating some and drinking..... I have stayed right by his side and watched his every move.... finally last night he would stand over his paper and rock back and forth ..... and you could tell he was trying to pee.... his little penis would move up and down like he was trying real hard..... and he would make small little yelping sounds.... I took him outside back and front ( peeing in the front yard is really really cool ) and he couldn't even go there....
finally about 1:00 am I took him to the 24 hour emergency vet and they catherized him which relieved him and gave me a different pain med.... ( metacam ) My vet gave him torbutrol 1mg.... and told me to give him a dose at 8PM and then another dose in the morning.... so last night I gave him another dose at 8 Pm ( that was during the time he was trying to potty and couldn't.... I did not give him the metacam since he had taken the torbutrol ...last night...
Wed morning ( today ) I gave him the metacam and he peed a good amount once this morning about 7:30 but has not peed again it is 1:00 PM now... I called the original vet and ask what I should do and he said don't worry he should be fine .....
Has anyone had any experience with this.... he walks around and seems okay he just won't potty ...... what can you do to make them potty ....
I just want to do the right thing.

So sorry for this post it should have been new thread !!!!!!!!!!!!

[Sawyers mommy]

So glad your baby is improving. These little yorkies have the hearts of lions don't they? You are in my prayers, please keep us informed of her improvement, and hang in there. She sounds like a very special baby.

[dcapper]

When's the next update on Brooke? I'm curious how the little sweetie is doing.

[yorkieK9trainer]

YorkieChic1,

No, no. I knew all of that already. Bad wording. I wanted to know where you got her, not because of her condition, but because she's so damn cute. ha ha


How is she doing?

[YorkieChick1]

Originally Posted by dcapper

When's the next update on Brooke? I'm curious how the little sweetie is doing.

Here's an October update on Brooke! Thanks to Dawn, DivaPup, a yorkie talk member, Brooke is doing well. She let us know about a Yahoo group named NewGMEDogs, it is a chat group and support group for people that have dogs with GME like Brooke. Well on that site I found a Dr. Allen Sisson in Boston who has a good track record with his drug protocol. One dog was diagnosed at 3 years old and is still alive at 9 years! I started crying when I read this and realized that I had some hope that Brooke might have a relatively long life. At UC Davis, the longest living GME dog was only 2 1/2 years, so I was happy to see a new treatment. Brooke started Dr. Sisson's protocol at the end of Sept., she is on high doses of prednisone and cytosar. She will follow his protocol and then the hope is that she will go into a remission and be off the drugs. She is doing well on the higher doses, the only problem is that she has doubled her weight due to the steroids!! She was 2.1 lbs and now she is a porky 4.5 lbs!! She has a round belly and chest!! She looks so cute though. They say that when she gets off the pred that she will lose the weight fast. She is also walking much straighter and can go up her doggie stairs and down them!!! That is a miracle, since she had a stroke and couldn't even move a couple of months ago! She goes to acupuncture and I think that has helped alot too. She loves it when the needles are in, she gets so zen that she almost falls asleep. Then, the next day she has extra energy from it. Thanks for everyone's best wishes and I will update soon!!

[laurenr]

Originally Posted by YorkieChick1

Here's an October update on Brooke! Thanks to Dawn, DivaPup, a yorkie talk member, Brooke is doing well. She let us know about a Yahoo group named NewGMEDogs, it is a chat group and support group for people that have dogs with GME like Brooke. Well on that site I found a Dr. Allen Sisson in Boston who has a good track record with his drug protocol. One dog was diagnosed at 3 years old and is still alive at 9 years! I started crying when I read this and realized that I had some hope that Brooke might have a relatively long life. At UC Davis, the longest living GME dog was only 2 1/2 years, so I was happy to see a new treatment. Brooke started Dr. Sisson's protocol at the end of Sept., she is on high doses of prednisone and cytosar. She will follow his protocol and then the hope is that she will go into a remission and be off the drugs. She is doing well on the higher doses, the only problem is that she has doubled her weight due to the steroids!! She was 2.1 lbs and now she is a porky 4.5 lbs!! She has a round belly and chest!! She looks so cute though. They say that when she gets off the pred that she will lose the weight fast. She is also walking much straighter and can go up her doggie stairs and down them!!! That is a miracle, since she had a stroke and couldn't even move a couple of months ago! She goes to acupuncture and I think that has helped alot too. She loves it when the needles are in, she gets so zen that she almost falls asleep. Then, the next day she has extra energy from it. Thanks for everyone's best wishes and I will update soon!!

Oh I am just so happy that Brooke is doing so well. She must look too adorable as a "porky Yorkie"!What a great Mama she has!
Hugs to you both,
Lauren

[myboy]

I am so glad to hear that Brooke is doing better. I will keep you all in my prayers. Keep up the good job Brooke.

[dcapper]

Glad Brooke is feeling better. Toby has been on Prednisone for around 8 years old because of a protein illness and he's doing great at 16. Unlike some people, I am a firm believer of Prednisone. Keep updating us on how she is doing!

[saphire]

I was very pleased to see your update. Will pray that Brooke continues to do well.

[Dan & Corinne]

Originally Posted by YorkieChick1

Well, I haven't been able to update because I have been really busy taking care of Brooke and driving back and forth to UC Davis hospital. Brooke had a stroke 4 weeks ago during a Cranial Spinal Tap. She had a bad reaction to the anathesia and came out of it in a contorted c position. She couldn't move and cryed when you moved her. Over the last 4 weeks, her progress has been amazing. She had a few small seizures but she is on predisone and phenobarbitol and she is doing better now. She can stand and walk for a few seconds. She eats and drinks like a champ. She has the heart of a lion and constantly inspires me daily. She has a light inside her that refuses to be extinguished! She is still not normal but she gets stronger everyday and she is determined to live every day to the fullest, which is what we all should be doing. I am very proud of my little girl, and am so grateful that I am her Mommy! Please keep praying for her!

Jewel had GME also and we were on phone consutation with Dr. Vernau at UC Davis. She has a deep interest in GME and when I was working with her she was trying to get a research grant. If she is not your doctor at UCD, you may want to see if you can meet with her. She is wonderful, answered my calls and emails even when she was on vacation.

You have the best care possible - Stay strong for that beautiful baby of yours.

Corinne

Here is a link to one of my Threads about Jewel and her battle with GME:
Necrotizing Encephalitis or GME

[GinosMommy]

what an adorable baby! I pray everything works out for the best and she is in no pain.

BUG HUGS to you!