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03-16-2006, 03:20 PM | #1 |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Any suggestions greatly appreciated You may or may not remember this from a previous thread. My 9 year old son Ethan is high functioning autistic. The past few months we have been having a problem with sensory issues and his high level for pain. He has over the last 4 months burnt his face first was on a lava lamp which, I threw out he touched the corner of his mouth to it. The he burnt high on his cheek bone on our heater just a little over a month ago it looked really bad his whole eye swelled up, by the time he got up the next morning it was down 95% or I would have taken him to the doctor. Then a few days after that he fixed some popcorn and then placed the hot part of the bag to his lip and burnt it. Now just this past week he touched our toaster oven and burnt the corner of his mouth again. My main concerns are his high tolerance for pain he never tells us he has hurt himself on his face until I notice it the next day. I'm afraid that he may do permanent damage to his face or burn hisself so severely that I have to take him to a plastic surgeon. I took him to the doctor today big waste of time. He wasn't of any help at all. They did a urine sample to rule out diabetes, he said sometimes that can be a sign or diabetes. Thankfully there was nothing abnormal in the sample to suggest anything wrong. I have threaten to take away his computer privileges, video games, and tv out of his room if he deliberately does this again. But, I'm concerned that he may hurt himself accidently and not tells us. Has anyone been through anything like this? I'm going to the school in the morning to meet with his teacher and a counselor at the school, they were doing a little research to see if anyone else has had to deal with this and what they did. Anyway, I'm just about at my wits end with him. I don't know if I can trust him with anything anymore. He only does this to his face. The doctor even had him to pull his pants down and check to make sure he didn't have any other places on him. I knew he didn't because he had just had a bath before we went to the doctor and I had already checked him out throughly. My husband told him that if he didn't quit doing this that the police may come and take him away from us because they would think that we are hurting him and starting crying over that. Hopefully he won't do this again. Sorry for rambling. Thanks for listening.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 |
Welcome Guest! | |
03-16-2006, 03:25 PM | #2 |
Senior Yorkie Talker Join Date: Jan 2006 Location: Jacksonville, Florida
Posts: 137
| As a nurse, I just worry that it may be more metabolic than behavioral in nature. It also doesn't seem like the physician you took him to was very concerned. Performing a urinalysis seems very strange in light of all his current problems.
__________________ My goal in life is to be as good of a person that my Yorkie already thinks I am. |
03-16-2006, 03:27 PM | #3 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
Yeah I know. He is suppose to be up on all of the genetic and other disorders there are. I'm going to get in touch with the Emory Autism tomorrow and see what they can tell me.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
03-16-2006, 03:27 PM | #4 |
Donating YT 14K Club Member | I'm sorry that you're going through this. I think that you guys are taking the correct measures in talking to the people at school. Hopefully, they can steer you in the right direction. You son is very lucky to have loving, kind parents.
__________________ As always...JMO (Just My Opinion) Kimberley |
03-16-2006, 03:29 PM | #5 |
Senior Yorkie Talker Join Date: Jan 2006 Location: Jacksonville, Florida
Posts: 137
| I would recommend finding another physician at this point. Firstly, he needs to have a complete metabolic profile performed to rule out any problems that might be physical in nature. There are more labs that could be performed, but a baseline metabolic profile will be a very good start.
__________________ My goal in life is to be as good of a person that my Yorkie already thinks I am. |
03-16-2006, 03:29 PM | #6 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
Thank you. I'm keeping my fingers crossed that they will have some news for me tomorrow.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
03-16-2006, 03:30 PM | #7 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
Thanks I will most definitely look into that.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
03-16-2006, 03:31 PM | #8 |
Senior Yorkie Talker Join Date: Jan 2006 Location: Jacksonville, Florida
Posts: 137
| Sorry. I posted my last response prior to reading of your plans. Please keep us updated. I'll have you and your family in my prayers.
__________________ My goal in life is to be as good of a person that my Yorkie already thinks I am. |
03-16-2006, 03:36 PM | #9 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
That's ok. Thanks for your response. Thanks again.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
03-16-2006, 03:41 PM | #10 |
Donating YT 10K Club Member Join Date: Jul 2004 Location: Alabama
Posts: 17,674
| Is Ethan's regular doctor experienced with Autistic children? If not I would try to find one. I am so very sorry you are having this problem, I know it is very frustrating, sometimes you just don't know what to do or where to turn....... I am going to send you a pm...... hugs cindy |
03-16-2006, 03:47 PM | #11 |
Donating YT 9000 Club Member Join Date: Sep 2005 Location: North Carolina :)
Posts: 10,616
| I'm sure his Teacher and Counselor will have some answers for you. This must be very hard on all of you. Hang in there, someone will be able to help. I'll be thinking of you all.
__________________ Friends are God's way of apologizing for our relatives. "Love & Support Our YT Members" Gina & Princess Member of the SSLS |
03-16-2006, 03:52 PM | #12 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
The one I saw today is suppose to be experienced with autism and other genetic disorders. I was very disappointed.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
03-16-2006, 04:34 PM | #13 |
Slave to Max 'n Abbie Donating Member Join Date: Feb 2006 Location: Pittsburgh
Posts: 1,529
| It's common for many children with autism have sensory issues. Does he exhibit sensitivities to other things such as sound, light or touch (different textures)? Sensory Integration therapy has been utilized by occupational therapists to help children with autism deal with sensory issuses. Are you familiar with sensory integration therapy? Are there any specialists at his school that provide services for your child? Perhaps someone there may be able to give you info re: whether he may be a candidate? I'd also get another doctor to check him out. |
03-16-2006, 05:18 PM | #14 |
YT 6000 Club Member Join Date: Nov 2003 Location: Seattle, WA
Posts: 6,238
| If you do go to another doctor, you may want to have him document all that you have written above into Ethan's chart, in case anything ever happens in the future with child protective services, it's good to have documentation to protect your family. It looks like you've gotten some good advice, hope it all works out for your family. |
03-16-2006, 05:18 PM | #15 | |
YT 2000 Club Member Join Date: Feb 2005 Location: North wilkesboro, NC
Posts: 2,785
| Quote:
I'm very familiar with sensory issues. It's just never been an issue until now. So, this is something new for us. He has had speech and OT. I'm hoping to find something more out over the next few days. I have a meeting with his teacher in the morning to see if she found out anything. I also email the Emory Autism Center tonight, it may be a few days to hear back from them. Thanks for the info.
__________________ Sheila, Mollie & Wyatt Ethan my pride and joy Mollie www.dogster.com/?176293 Wyatt www.dogster.com/?205723 | |
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