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Old 02-02-2006, 01:43 PM   #1
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Thumbs up I get to go to NIH!!

Finally I will get some answers and not the run around. For those of you who don't know me I have lupus and get seizures that have baffled many doctors. I also have Sjogren's and Hashimoto' and auto immune hepatitis. I'm only 36 and feel like I'm 86. I am so excited and nervous at the same time. My Mother actually worked there when I was a young girl. It's 2 hour drive, but they are the best in the world!! I can't wait to get better. Thanks so much for everyone's prayers and I'll let you know how it goes. I'll have to wait a while before they will see me, but it's worth it.
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Old 02-02-2006, 01:59 PM   #2
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I'm so happy for you!! Hopefully you'll be able to get some answers and treatments there I'll continue praying for you From your posts, I can tell that you're a wonderful and very talented person.
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Old 02-02-2006, 02:03 PM   #3
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Oh, I've been thinking about you. My thoughts and prayers have been with you.

I don't know what NIH is?

Did they ever do Cat Scans on you because of the dizziness? Just curious.
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Old 02-02-2006, 02:05 PM   #4
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I'm SO HAPPY for you and the BEST OF LUCK at NIH - you sound wonderful today and that has to really boost your moral.....I really hope you can get some relief and if anything - they will be able to be more accurate on your treatment right ?

Way to go Michelle - that's the best thing I've heard all day and high fives to you girl !
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Old 02-02-2006, 02:22 PM   #5
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Quote:
Originally Posted by Muffie's Mom
Oh, I've been thinking about you. My thoughts and prayers have been with you.

I don't know what NIH is?

Did they ever do Cat Scans on you because of the dizziness? Just curious.
LOL NIH is The National Institute of Health! I've had cat scans mri's and and tons of other tests. My doc says it's something they don't know and that NIH will take me and I am so excited.
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Old 02-02-2006, 02:23 PM   #6
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Originally Posted by red98vett
I'm SO HAPPY for you and the BEST OF LUCK at NIH - you sound wonderful today and that has to really boost your moral.....I really hope you can get some relief and if anything - they will be able to be more accurate on your treatment right ?

Way to go Michelle - that's the best thing I've heard all day and high fives to you girl !
Now only if I could start painting again. I may try tommorow. I get down when I'm not painting or drawing. LOL It is so theraputic for me!!
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Old 02-02-2006, 02:23 PM   #7
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I'm so glad for you! Good luck!
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Old 02-02-2006, 02:27 PM   #8
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We are all wanting the best for you Michele. *~~*HUGS*~~*
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Old 02-02-2006, 02:34 PM   #9
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Quote:
Originally Posted by waistfull
LOL NIH is The National Institute of Health! I've had cat scans mri's and and tons of other tests. My doc says it's something they don't know and that NIH will take me and I am so excited.
Where is NIH? I'm glad you're going to get in. Perhaps they'll have some new technology that will help you. Let's pray they do.

Good luck.
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Old 02-02-2006, 02:42 PM   #10
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Quote:
Originally Posted by Muffie's Mom
Where is NIH? I'm glad you're going to get in. Perhaps they'll have some new technology that will help you. Let's pray they do.

Good luck.
It's just north of Washington D.C. in Maryland where I live. It's about a 2 hour drive as I live 20 miles south of D.C. They've got so much technology there, they do so much testing of people from all over the world!!
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Old 02-02-2006, 03:02 PM   #11
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Quote:
Originally Posted by waistfull
It's just north of Washington D.C. in Maryland where I live. It's about a 2 hour drive as I live 20 miles south of D.C. They've got so much technology there, they do so much testing of people from all over the world!!
I'm so glad you are close enough to go there.

Good luck!
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Old 02-02-2006, 04:33 PM   #12
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Oh that is great news...good for you- I truly hope you do not have to wait too long-
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Old 02-02-2006, 05:09 PM   #13
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Michelle I am so happy for you....you deserve to feel better and finally get some answers!! You are such a strong woman and I admire your courage....I am so glad you are able to get in with the NIH!!!

I will continue to pray for you as you wait to hear something....
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Old 02-02-2006, 07:46 PM   #14
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Default I am so happy!!

I am so happy to see this, someone gave me the link. I have been so worried about you. I got a new email address Michele, frmme2u@min.midco.net.
I am glad you get to go there!! I pray that they will be able to help you.... You are such a wonderful person!! HOpe you can start painting again soon too!! I know how much you love that...
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Old 02-03-2006, 09:43 AM   #15
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That is wonderful news! I hope they can provide you with the answers you deserve! Best wishes, and let us know how your visit goes!
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