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Old 12-08-2009, 06:38 PM   #1
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Default Fibromyalgia

Anyone else here with fibromyalgia. I am just curious if your little furbabies are "in turn" to your flare ups. Jasmine and Prissy will not leave me at all on my bad days. They are glued to me. They have to actually be picked up and taken outside to do their business by family members because they will not leave my side during these times. They are so loyal. I love them so much!
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Old 12-08-2009, 08:31 PM   #2
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I have fibro and Lupus. I had a 14 year-old Tabby that was "in tune" with all my bad days. He would stay by my side and be a good boy until I seemed to be doing better.

Prince is my 11 month-old Yorkipoo, I got him when the cat passed. I think Prince is too young to sense my bad days, he always wants to play. There are some days, like today, where I had to stay in bed all day and he was a good boy keeping himself entertained until I got up.

I feel really guilty that I'm not able to run and play like other mommie's so I try to shower him with love, comfort and (healthy) treats as much as I can.
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Old 12-08-2009, 08:52 PM   #3
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I have fibromyalgia and diabetes and my furbaby is exceptionally good when I have bad days. He seems tuned into everything. Yorkies are amazing animals. I have had several different breeds of dogs but none were like the Yorkies I have had. They even look wise.
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Old 12-08-2009, 09:17 PM   #4
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It is good to know both of you. I have had a flare the last several days and been in bed and surfing the web. My furbaby girls have been so loyal to stay by my side. They give me so much comfort, companionship and love. I know what you mean Princemom when you say that you feel guilty that you can't run and play with them, but you know that they still love you the same they are just satisfied being with you. I have fibro and radiculopathy. How long have you both been DX'd with the FM, lupus and DM? Again it is good to meet you both!
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Old 12-09-2009, 07:45 PM   #5
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I've had Lupus for 20 years and (diagnosed) fibro for the past 10, although I feel I've had it longer.

When I had my Tabby it was okay if I didn't feel up to playing because my cat was independent; as long as the food bowl was full and there was a warm sunny place to nap he was fine.

But dogs are different; they need walks and to be able to run around. And Prince loves attention - ALOT of attention all the time. The days I have to stay in bed are the times when the guilt kicks in.

I was taking Lyrica (forgot the dosage) but my insurance stopped paying for it so I take Gabapentin but it's not as good. I'm looking to try Sevilla and see how that works.
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Old 12-09-2009, 11:09 PM   #6
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I was DX'd in 2004, but like you said prob. had it for much longer. Yes, I agree, sometimes I do feel guilty because I want to get up and play more with my girls, but they seem to be happy with me and they sure do get a lot of attention since I unfortunately can no longer work. I haven't been able to try Lyrica due to the Topamax that I take for my migraines, but I have been reading up about Sevilla. Keep us informed if you try it. I take Cymbalta and Flexeril that has been very beneficial and Requip for RLS and a sleeping aide plus pain meds as needed, so far I am doing pretty good with the regimen that I am on. If you don't mind my asking why wouldn't the insurance pay for the Lyrica? I hope you have a good night.
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Old 12-11-2009, 08:46 AM   #7
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I have Fibro and RLS. I have one girl (Jenna) that doesn't leave my side when I am hurting. I was just Dx'ed and still trying different meds. Alot of them make me vomit or very sick because I had gastric bypass 6 years ago and don't have enough stomach or intesine for them to work right. This is all new to me and I am trying to learn all about it. At times I feel really hopeless...
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Old 12-13-2009, 01:01 PM   #8
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Quote:
Originally Posted by JasmineNoelle View Post
I was DX'd in 2004, but like you said prob. had it for much longer. Yes, I agree, sometimes I do feel guilty because I want to get up and play more with my girls, but they seem to be happy with me and they sure do get a lot of attention since I unfortunately can no longer work. I haven't been able to try Lyrica due to the Topamax that I take for my migraines, but I have been reading up about Sevilla. Keep us informed if you try it. I take Cymbalta and Flexeril that has been very beneficial and Requip for RLS and a sleeping aide plus pain meds as needed, so far I am doing pretty good with the regimen that I am on. If you don't mind my asking why wouldn't the insurance pay for the Lyrica? I hope you have a good night.
I'm not able to work either. I try to hold down a part-time job but for every 1 day that I work I'm in bed for the next 2 days recooperating.

I used to have terrible migraines then I had a spinal tap; now I rarely get even a headache. I also take sleep meds; either Lunesta or Tylenol PM (quick release gel caps). My insurance would no longer pay for Lyrica because of the cost and told me I had to try a cheaper drug (Gabapentin) for 6 months then I could go back to Lyrica. Dumb huh?

Good to hear someone is on something that works for them. Hope you continue to do well.
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Old 12-13-2009, 02:51 PM   #9
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Default how did the lyrica work

when you were taking it? I evidently have to have everything else fail first before I can try that. I take topomax, tramadol and lexapro. I also work 12hr shifts. Right now I'm on day 3 of a 5 day stretch of 12hr shifts and they are not straight days, they are all different hours. Needless to say, I have some not so good days.... oh yeah and synthroid for the dead thyroid... arggh.. hard to go for disability while you work and hard to quit working when you can't afford to go without the paycheck, how would I afford the dog dresses, I mean really
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Old 12-13-2009, 03:31 PM   #10
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when you were taking it? I evidently have to have everything else fail first before I can try that. I take topomax, tramadol and lexapro. I also work 12hr shifts. Right now I'm on day 3 of a 5 day stretch of 12hr shifts and they are not straight days, they are all different hours. Needless to say, I have some not so good days.... oh yeah and synthroid for the dead thyroid... arggh.. hard to go for disability while you work and hard to quit working when you can't afford to go without the paycheck, how would I afford the dog dresses, I mean really
How much Tramadol do you take and how often? I was only given 36mg twice a day. It is not cutting it at all. I go back in the morning to talk to the doctor about taking it more often or something else. I really dread going. I don't feel like I have found the right doctor.

I am afriad of the Lyrica because I heard it can cause massive weight gain.
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Old 12-13-2009, 03:49 PM   #11
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Default I think

it's 50mg 4 times a day. I'm at work and don't have the bottle with me. I carry my day's supply...lol The topomax is 100mg twice a day. So, I think the tramadol is 50 4 times. Needless to say, the combo of fibro fog and drug fog doesn't make my brain function at maximum capacity and shhh. I'm a 911 dispatcher... how scary is that?!??!

ya think when I kill a caller, they'll let me have disability???
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Old 12-13-2009, 03:54 PM   #12
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rheumy thought I had Lupus, all my tests were positive for that. But then they went negative. Lupus is a cagey disease. My current rheumy has never been able to get a positive so she is sticking with fibro. All I know is that so far no regimen really works. I just live with pain, everywhere. The Lexapro is a new fix and it ain't working. Prednisone worked pretty good. I have chronic fatigue but no one seems to be able to address that. A doctor gave me provigil for that, works great on midnights but the rheumatologist was horrified.

yeah, weight gain scares the heck out of me too. Pain can't get better by adding more weight to the joints, I wouldn't think...
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Old 12-13-2009, 04:05 PM   #13
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nana911
I worked in the medical field for a very long time before I had to quit and apply for disability. I know what you mean, it is difficult to go without a paycheck at first, but if you ever come to the place where you can't work any more you won't have a choice anymore. This FM is really difficult on us at times and I agree the fibro fog is a challenge too. My biggest pain lately has been in my hips for the last week, it is finally letting up some. Gentle Hugs to All
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Old 12-13-2009, 04:23 PM   #14
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I've had Fibro for more than 10 years. I take Naproxen and Gabapentin. And that still doesn't eliveate the pain. I am on disability for my mental health problems. The pain I feel from Fibro plays into my major depression. When I'm really bad, most of the time, and just stay in bed, all three of my kids snuggle up close. My lower back and right leg is what is giving me the most pain. So walking my kids can be difficult especially when my 30 lb Cocker Spaniel wants to go a different way.
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Old 12-13-2009, 04:29 PM   #15
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it's the weather change....absolutely the worst... oh well... my dh broke his neck 5yrs ago and did a spinal cord injury, so he has central cord syndrome, you have been in the medical field would know about that. 'tis a challenge, took mr oven mitt hands and chronic severe pain 2 1/2 yrs to get SSDI. So, I know that fibromyalgia would be an uphill battle. I'll keep working until I don't know... I have no time on the books, I'm sure you know about that too...LOL it's all relative. can always be worse, my furbabies are healthy and keep us amused, and we can sit up and take nourishment. We have a roof over our heads and are warm and worry about too much food in our bellies... god knows it could be worse....
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