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Old 07-30-2008, 10:22 AM   #1
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Default It's official...

as of Monday Cyan my seven year old has been officially diagnosed.

Autism
ADHD
prominent emerging features of dysphonetic dyslexia

She is found to be about 2 years behind her age level and 3 years behind in phonics. ( she registered at 4 yrs old in pseudo word decoding (measures use of phonetic knowledge to sound out nonsense words)
She is one point below average on her iq (normal was 90-100 she is 89)

And has no working knowledge of phonics.

Where we go from here.. I'm unsure. But at least I have my second opinion, first dr said aspergers Syndrome.. and was wrong.

I start her on a patch to control the melt downs she has and to see if we can get her attention to improve before school time. though she can remain in 1st grade this year (she was held back in K) she will most likely need special education as she gets older and classes get more centered around phonics.
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Old 07-30-2008, 11:23 AM   #2
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I am sorry to hear this, but IM glad you got her diagnosed and now you can really help her to get ahead by understanding what is going on in that little head of hers. Good Luck and I hope it all works out by the new school year.
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Old 07-30-2008, 11:40 AM   #3
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A friend's child has been diagnosed with Austism. She has gotten loads of help and information regarding local programs available for her child through this group.

Autism Speaks, Home Page
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Old 07-30-2008, 01:18 PM   #4
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Thank you both....

and thank you for the link.. I've been collecting all the information I can about this and trying to get as educated on the matter as possible. I was really expecting the Autism but the adhd and the dyslexia kinda took me by shock.
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Old 07-30-2008, 01:23 PM   #5
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I worked for years in special ed. It is the law that your child be serviced. My son is dyslexic and it took a big fight for me to get services for him but this was years ago. You can start now before school even starts so that she can start the year with the right program.
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Old 07-30-2008, 01:32 PM   #6
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My close friends daughter is Autistic with adhd. She is now 36 with a wonderful job working with special care children and she loves it. She is a happy, healthy, married mother of 2 wonderful kids (Some of my adopted grandkids). She overcame everything and is a super sweet person.

Now that you know exactly what you are facing.. you will be able to handle it. Getting her into the right programs is essential.. And it sounds like you are on top of it. Good for you. Praying for both you and your wonderful daughter. Bobbi
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Old 07-30-2008, 01:57 PM   #7
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I just wanted you to know that I am sorry to read this.

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Old 07-30-2008, 03:45 PM   #8
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Grandmatoall.. THANK YOU reading that hs perked up my day... the smallest dreams I had for her seemed so far away... thank you so much for that post..... I am okay with this.. I have always known she as unique so this is okay.. but thank you *hugs*
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Old 07-30-2008, 03:51 PM   #9
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Sounds like you are a great and strong mother. I am sure your daughter will lead a full and sucessful life with your guidence.

Hugs,
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Old 07-31-2008, 03:01 AM   #10
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sorry to hear this.. but it is definitely a good thing to be diagnosed and know what you are dealing with.. now you can take steps in helping your daughter!! and like you said you have always known her to be unique.. now you just have a clearer understanding as to what will work for her! hugs to you!! and i will keep you guys in my prayers!!
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Old 07-31-2008, 03:52 AM   #11
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You and your daughter are in my thoughts. My brother has Aspergers, which is on the Autism spectrum, and my mom found the website Autism Society of America: helpful. There is also a book (geared mostly towards Aspergers) called A Parent's Guide to Asperger Syndrom and High-Functioning Autism by Sally Ozonoff, Geraldine Dawson, and James McPartland that has a section on navigating through the special-ed law, so if you are concerned about your district not providing services that might be a good place to read - even if you just stop by a library or barnes and noble to see if any of the info would help! In my state, the school district pays or provides services year-round for any child who has an IEP - my brother is going to a "chat club" this summer, which is really a social skills class. She will do great - it is amazing how well kids do when they get the right diagnosis!

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Old 07-31-2008, 07:25 AM   #12
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Quote:
Originally Posted by Too Cute Teddy View Post
You and your daughter are in my thoughts. My brother has Aspergers, which is on the Autism spectrum, and my mom found the website Autism Society of America: helpful. There is also a book (geared mostly towards Aspergers) called A Parent's Guide to Asperger Syndrom and High-Functioning Autism by Sally Ozonoff, Geraldine Dawson, and James McPartland that has a section on navigating through the special-ed law, so if you are concerned about your district not providing services that might be a good place to read - even if you just stop by a library or barnes and noble to see if any of the info would help! In my state, the school district pays or provides services year-round for any child who has an IEP - my brother is going to a "chat club" this summer, which is really a social skills class. She will do great - it is amazing how well kids do when they get the right diagnosis!
thank you for the info.. I've been on the site for a few days now and it has wonderful info... the Book
A Parent's Guide to Asperger Syndrom and High-Functioning Autism
was on the list of things the Psychologist told me to get and read for her. I think I've covered with the school. Cyan repeated kindergarten and had the same teacher both years,one that loves her as though she were her own. She was present at the evaluation for Cyan where we learned the Diag. She has said she will take care of the arrangements at the school and make sure that Cyan gets what she needs. She and I worked together both years to get Cyan where she could enter first grade. She will be wonderful,and we will do whatever it takes to help her through. Same dreams for her, same goals just a different path to get to them is all.

Thank you to all that have commented with such support. It took a few days to settle in that this is what was going on. Now we go forward and start the path to get her there.
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Old 07-31-2008, 10:03 AM   #13
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I graduated from LAW SCHOOL with a classmate that was autistic. He was developmentally delayed and did not speak a word for the first four years of his life. I do not know how he was treated or for how long, but I know that in elementary school he was held back twice and placed in special education, but by the age of 31 he was recieving a standing ovation collecting his diploma from a top 25 law school. Your daughter will be fine, people overcome autism, it is a difficult set back but it definitly does not have to be devestating.
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Old 07-31-2008, 10:12 AM   #14
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Just want to encourage you to always remember that you have many rights by law. I am so glad that you appear to have an understanding teacher at this point. May not always be true. A good friend of mine has spent much of her life fighting for her daughter's rights. Her daughter is now 32 and she still has to fight for her rights in the assisted living arrangement she is in. The law is on your side. Sounds like you are educating yourself. That is a great way to be!!! Joanne
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Old 07-31-2008, 10:18 AM   #15
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I just want to say that it is wonderful that you got her diagnosed and now you can help her in the best possible way! I'm so glad that people have shared their wonderful stories with you! Keeping a hopeful, positive outlook is going to be the best thing for your daughter.
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